Description of the cross-cultural process adopted in the STRiDE (STrengthening Responses to dementia in DEveloping countries) program:a methodological overview

Farina, Nicolas; Jacobs, Roxanne; Sani, Tara Puspitarini; Schneider, Marguerite; Theresia, Imelda; Turana, Yuda; Fitri, Fasihah Irfani; Albanese, Emiliano; Lorenz-Dant, Klara; Docrat, Sumaiyah; +7 more...Du Toit, Petra; Ferri, Cleusa P.; Govia, Ishtar; Comas-Herrera, AdelinaORCID logo; Ibnidris, Aliaa; Knapp, MartinORCID logo; and Banerjee, Sube Description of the cross-cultural process adopted in the STRiDE (STrengthening Responses to dementia in DEveloping countries) program:a methodological overview. Alzheimer's and Dementia: Diagnosis, Assessment and Disease Monitoring, 14 (1): e12293. ISSN 2352-8729
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Cross-cultural adaptation is an important part of using validated questionnaires across countries and settings. Here we describe the cross-cultural process adopted in the STRiDE (STrengthening Responses to dementia in DEveloping countries) program. We adopted a cross-cultural adaptation process including forward translation, back translations, and cognitive interviews of the STRiDE toolkit. In total, 50 older adults and 41 carers across sites in Indonesia and South Africa participated in cognitive interviews; field notes and verbatim quotes are reported. We describe the cross-cultural adaptation process of the STRiDE toolkit. During the process, issues were identified with the translated toolkit, including aspects related to cultural appropriateness, terminology equivalence, and timings. The data demonstrate that a rigorous, yet pragmatic, cross-cultural adaptation process can be achieved even with limited resources. Our process should help the design and conduct of future dementia research in various contexts.

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